Home2020/02 February 7, 2020 -

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The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business last month — just over two years after the European Union decided to relocate the EMA to the Netherlands in the wake of Brexit. “A year ago, we lowered the flags in our London offices with a heavy heart,” Guido Rasi, EMA’s executive director, said Feb. 3 as the flags of...

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A recent survey found that U.S. residents are largely interested in and support continued research into the role of human genetics in treating and possibly curing illnesses such as sickle cell disease (SCD). Commissioned by the American Society of Human Genetics (ASHG) in partnership with Research!America, the online survey consisted of 1,100 adults plus another 775 for minority population oversampling. It was conducted in December by Zogby Analytics. Among the key findings are that most...

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For most of my life, I hid the fact that I have sickle cell disease. People only knew about my health if they needed to know. In other words, the only ones I could talk to about it were my immediate family members and doctors. This was not ideal growing up, because I wanted to ask so many questions. But there weren’t many people I could speak to about it. My understanding of sickle cell...

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People with sickle cell disease (SCD) treated with hydroxyurea in the U.S. still face many challenges, including the financial burden posed by their healthcare expenses, low treatment adherence and high treatment discontinuation rates, according to a study based on pharmacy claims data. The study, “Treatment patterns and economic burden of sickle-cell disease patients prescribed hydroxyurea: a retrospective claims-based study,” was published in Health and Quality of Life Outcomes.  SCD is a rare genetic disorder caused...