Home2020/04 April 9, 2020 -

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The Sickle Cell Disease Association of America (SCDAA) has announced the extension of its ongoing COVID-19 Emergency Fund Campaign to meet the needs of people with sickle cell disease (SCD) during the COVID-19 pandemic. The initial goal of the fundraiser was to raise $100,000 in 10 days. Recently, Global Blood Therapeutics (GBT) pledged $250,000 to help SCD patients during the COVID-19 pandemic, with $100,000 of that pledge going directly to the SCDAA’s Emergency Fund. While...

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First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. Now, the good news: You already know how to face loneliness and adversity — qualities that make you far stronger and better equipped to handle the nation’s worst pandemic in more than 100 years. Marshall Summar, MD, director of the Rare Disease Institute at Children’s...

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I have been self-isolating since March 19, and already I have been through a series of emotions during this lockdown period. Initially, most of these emotions were negative. A week into my self-isolation, the realization that I can’t leave my house hit me. Even though we are all on lockdown in the U.K., people still have reasons to leave their homes, such as exercise. But due to sickle cell patients being at a higher risk,...

https://mysicklefamilyllc.com/wp-content/uploads/2020/04/DX-687-1280x720.jpg

First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. Now, the good news: You already know how to face loneliness and adversity — qualities that make you far stronger and better equipped to handle the nation’s worst pandemic in more than 100 years. Marshall Summar, MD, director of the Rare Disease Institute at Children’s...