Home2020/06 June 9, 2020 -

The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Getting a timely and accurate diagnosis for a disease that few people —  sometimes even physicians — have heard of is challenging on its own merit. But people of racial and ethnic minorities must frequently overcome even greater challenges. The National Institutes for Health estimates that between 25 and 30 million Americans...